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Alert Jewelry

Who Needs Lymphedema Alert Jewelry?

If you have lymphedema, or are at risk for lymphedema, you should be wearing a lymphedema alert bracelet or necklace. This precaution is important because in an emergency situation you may not be able to provide this information. Wearing such a medical alert bracelet, and repeatedly telling hospital personnel, is also very important if you are having surgery or are hospitalized for any reason.

At the end of this article you can read a “real life” story "Lymphedema and Surgery" as posted by Lymph Notes member Emily P. Bees about her hospital experience.

Lymphedema Alert Wallet Cards

Lymph Notes makes available, upon request, a free wallet card designed to be placed in your wallet next to your insurance and other ID cards. In case of emergency such as an auto accident, you can be certain that someone is going to be looking for this information. However, when you are hospitalized this is not a suitable substitute for wearing the appropriate lymphedema alert medical jewelry

To receive your free wallet card, e-mail your request to ann@lymphnotes.com. Please be sure to include your mailing address with this request.

Lymphedema Wallet Card (Front)

Lymphedema Alert Wallet card (back)

Lymphedema Alert Jewelry

  • A bright pink plastic bracelet (sized for the arm or leg) is available upon request, and without cost, from Peninsula Medical Inc. To receive one, go to their website and complete your request. These bracelets are sent out by the company employees as a public service and we think they deserve a big "Thank You!"

Photo courtesy of Peninsula Medical Inc.

  • Many hospitals use color coded patient ID bracelets to identify specific conditions. In these situations, unless your pink band matches the hospital's color code it will be ignored.
  • If you feel more secure when wearing an alert bracelet or necklace, wearing a metal one is recommended. The National Lymphedema Network has gold plated or hypo-allergenic bracelets, and necklaces, available for sale. These are pre-engraved with a warning for lymphedema. The NLN also has more decorative bracelets available.

A G-Sleeve protects an at risk arm.

The G-Sleeve

 The G-Sleeve was designed by Gina M. Santosuosso, RN, BSN, to protect patients by preventing accidents from happening in a hospital setting and a busy nurse misses notes that read, When taking blood pressure, administering an IV or taking blood draws do not use this arm.”

The G-Sleeve was created to prevent these slip-ups. Doctors, nurses, and patients immediately loved it!!! For details as to where to purchase your own special sleeve, visit the G-Sleeve website.

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Surgery and Lymphedema by Emily P. Bees

"Last week I had another surgical experience. This was arthroscopic surgery on my left knee – about as far from my right chest wall lymphedema as could be. Beforehand I informed everyone involved about my lymphedema and they all assured me that they were well aware of the precautions for lymphedema and would be alert not to use needles or blood pressure cuffs on my right arm. However, whenever I would ask whether they were using the bright pink lymphedema arm bands, I would get blank stares. No one seemed to have heard of them.

"So I brought my own bright pink armband to the hospital and insisted on showing it around and wearing it. Everyone was impressed by it, but no one really knew what it meant – until they read it & frankly, hospital personnel don’t go around reading armbands before they act. Nonetheless, I managed to educate at least some folks along the way.

"Once the IV was started in my left arm (and I had informed at least 4 or 5 nurses about the LE in the preceding 5 or 10 minutes) another nurse came in and tried to put a blood pressure cuff on my right arm—despite all of my efforts to inform them, despite the notes on my chart, despite the pink armband. I stopped her. She informed me that with in-patients they hang a lymphedema sign over their beds, but that with outpatients there was no such procedure in place.

"I had spinal anesthesia with no sedation (my choice entirely). So I was fully awake and alert before, during and after surgery. In the O.R. they were very good about protecting the arm. It was entirely wrapped, placed next to my body, strapped down and covered. No way anyone could have gotten to it if they wanted to.

"However, when they wheeled me into the recovery room the blood pressure cuff scenario was repeated. Again, they were very cooperative once I informed them, put the notes in my chart, the informing everyone I could in advance, the people who brought me in from the OR being fully aware, and the pink armband were all for naught in terms of stopping them from attempting to place the cuff on my at-risk arm. Had I been sedated I would have wound up with a BP cuff on that arm.

"While, it is now obvious to me that when hospitals have no policy or procedure, and when their personnel are not trained about the pink armbands, just wearing the band isn't terribly effective. Despite this, I still think that taking the band along and educating as many people in the hospital to them as possible is a good idea. I’d do it again, if I needed any further surgery.

"I know from talking with friends in the medical business, that patient demands are frequently instrumental in changing the practice of medicine. However, if there is a next time, I will wear my pink armband and talk to everyone as before, but I will definitely also have someone write on my arm in permanent marker beforehand “Lymphedema, No Needles, No Blood Pressure this Arm” maybe twice, once on the lower limb and once on the upper. They made me write on my knee before surgery to confirm which leg was the correct one – if I can go into surgery with writing that close to the surgery site, certainly I can write on my arm to protect it.

"I still think that trying to educate medical personnel to their meaning is worthwhile. I also recommend wearing an armband—or legband is a good idea. Also, it is best to request it before you have a need and keep in for future use if necessary.

"One other thing I’m going to do is request that they send a sample arm/leg band to each of the hospital administrators whose names I’ve been able to obtain. I’ve already written letters to those individuals. I mention this because others here might want to do the same."

Our thanks to Lymph Notes member Emily P. Bees for allowing us to include her story here!

© LymphNotes.com 2009. This information does not replace the advice of a qualified health care professional.

Got a question or comment? Post in the 'Living With Lymphedema' forum.
Category: Living With Lymphedema Updated: 2009-11-13


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