Tone
Nov 11, 2005, 09:00 AM
Hi,
The Norwegian Lymphedema Association will celebrate its 20th anniversary in october 2006 and the plan is to have stands in as many locations as possible. We find that this is often easier in smaller places than in the cities.
We have a newsletter going out four times a year with a circulation of approx 1500 - Lymfeposten, as well as a website www.lymfoedem.no and a discussion forum on the net. All in Norwegian of course.
It is really great to see lymph sites popping up all over on the net - a great way to exchange information, give and receive support, - and not be alone!
I am 62, have secondary lymphedema in my left leg, - and lymphorrhea as well. Most of the time I cope - sometimes I just wish I could get rid of the stupid leg - but then it is actually rather nice for walking and the likes - so I will keep it even if it does give me a lot of trouble!
The Norwegian Lymphedema Association will celebrate its 20th anniversary in october 2006 and the plan is to have stands in as many locations as possible. We find that this is often easier in smaller places than in the cities.
We have a newsletter going out four times a year with a circulation of approx 1500 - Lymfeposten, as well as a website www.lymfoedem.no and a discussion forum on the net. All in Norwegian of course.
It is really great to see lymph sites popping up all over on the net - a great way to exchange information, give and receive support, - and not be alone!
I am 62, have secondary lymphedema in my left leg, - and lymphorrhea as well. Most of the time I cope - sometimes I just wish I could get rid of the stupid leg - but then it is actually rather nice for walking and the likes - so I will keep it even if it does give me a lot of trouble!