View Full Version : I feel so lost
May 6, 2009, 12:12 PM
I just feel so lost so disappointed. I go to the doctors but they don't have any answers and they say loose weight which i am doing but those words don't stop the pain from coming. My primary doctor is angry with me. well it feels like she is. she says she is frustrated because we can not find what is wrong. I don't mean to frustrate anyone I just want to get better so i can have a better life or a life. so i wait for them to now refer me to a pain clinic. My doctors office is short with me when i call to check on the referral. i think i should change doctors but this primary doctor has been through this with me from the beginning. i just wish i new how to be okay and how not to make everyone so angry with me.
i went to see the cancer surgery doctor to day he said all looks good and that he too feels it is the spine. however i can not go tell my doctor this anymore because she does not want to talk to me any more. i feel like a bad little girl. like i should just shut up don't say what is wrong and stop trying to find the answer just deal with the pain of sitting or walking.
May 7, 2009, 08:53 AM
I feel like I should respond but don't know what to say. Is there much pain with lymphedema? I have much pain but it's mostly from my Fibromyalgia. Getting docs to understand pain is so very hard.
You have not been a bad girl. I can understand you're wanting to stick with the doc that has been with you since the beginning. I'm in that same boat as well. Only I don't feel like I've done anything wrong. I'm just trying to get better.
Helen Keller said..."Keep you Face to the Sunshine and you Cannot see the Shadow"
May 7, 2009, 11:56 AM
OH Man oh Man!!!! I have met this amazing doctor who seems to understand so very much!! The back problems and neck stuff are musculoskeletal from the lymphedema being so big on one side I am like uneven and that is what pull the muscles. Wowowowowoow! Still have to lose weight but I have just lost 3 more pounds but is that fluid or what. The odd thing is that they use Botox for muscle pain. Wowee so she will contact me next week to set this up. I am sooo excited. I will have such a young looking neck and left side of my back (haha). Interesting eh? So she feels that with weight loss, (of course now tell me if I lose this armor I have put on all my life to protect me from the evil mankind and evil woman who will hunt me down and kill me what will protect me if I lose weight? Will I have to get a dog??) and with these exercises she has given me and the Botox I may be able to have a normal life again! Would that not be grand! I am so happy and so relieved to finally have met her. I am waiting for the “pain clinic” referral then I can go there I am excited about that too. They have hypnotists and neurological doctor and rheumatic docs there they can teach you to meditate the pain away and so on! I am sooo happy right now this very moment. I cried all day yesterday I was so upset not knowing if I would be okay or not and not hearing any good news from any doctor. Today is good!
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