Downing Street Petition

[Bahons2]

Hello All

I'm new, British, currently living in France and have lymphoedema in both arms from breast cancer treatment.

Why am I posting in here? Just to let any other Brits who use this forum know:

There is now a lymphoedema petition on the Downing Street Petitions website. The petition calls for more recognition of the suffering of people with both primary and secondary lymphoedema and for more money for treatment, education of healthcare professionals and research. The link to sign (where you can also read the full text of the petition) is:

http://petitions.pm.gov.uk/lymphoedema/

(The website will then e-mail you back and you have to click on the link in the e-mail to finally complete the signing process).

PLEASE remember that you MUST be a British citizen (expat is fine - there is a specific box to check for this) or UK resident to sign.

Thanks for your support!

[Bahons2]

Me again:

I'd just like to thank everyone who has signed the petition so far.

If you haven't already signed, please consider doing so (only your name appears, no other personal details will show) and if you have, can you think of any other Brit (in the US or back in the UK) who might be interested in doing so? Friends, family, carers, therapists, colleagues?

[Bahons2]

Hi all

I just wanted to let everyone know that the petition now has no less than 200 signatures on it! This is significant, as the Government is obliged to formulate a reply (everyone who has signed will be e-mailed a link to where they can go to read it) to any petition containing 200 or more signatures - I believe this normally happens when the petition closes, which is January next year.

So, once again a big 'thank you' to everyone who has taken the trouble to sign, and is getting others to do the same, and also to the LSN who very kindly publicised the petition in the latest edition of 'Lymphline'.


You MUST be either a British Citizen (expat is fine) or UK resident to sign.

For anyone new to the board, here is the link again:


http://petitions.pm.gov.uk/lymphoedema/

[Bahons2]

Just a quick update on the petition!



( http://petitions.pm.gov.uk/lymphoedema/ )



It now has over 300 signatures.



Thanks to all the Brits (patients, friends, family, carers, colleagues) who have given their support by signing.

[Bahons2]

Hi all

Just to let you know, the number of signatures to the petition has now passed the 400 mark.

Thanks again to all the Brits using this site who have signed and done their bit to spread the word.

[Bahons2]

Hi all

Just a brief update... the petition passed the 500 mark yesterday, so, once again, thanks to everyone on this site who has taken the trouble to add their name and spread the word.

It's greatly appreciated!

[Ann]

What great news -- over 500 signatures. It is great when folks get together to work toward a common goal!

Ann

[Bahons2]

Thanks, Ann

Just wanted to say there has been a small avalanche of signatures to the peition in the last few days and the current total is now over 550.

Thanks, everyone!

[Ann]

Thanks for the update. We are glad to hear that you have more signatures and perhaps this will remind others that the time to sign the petition is NOW!

Ann

[Bahons2]

Thanks for your encouragement, Ann

The number of signatures in now well past 600

Thanks for your support, everyone.

S

[Bahons2]

Number of signatures fast approaching 750

Thanks, everyone!

[Bahons2]

Hi all

Giving the petition a little bump, as there are less than 10 days to go before it closes and I'm hoping it will pass the 'magic' 1000 barrier!

Thanks for all your support to date.

X

S

[Bahons2]

Hi all

The petition closes at 2359 tonight, so I am just giving it one final plug and saying thank you to everyone who taken the trouble to sign over the last year.

If you've been meaning to sign and haven't got round to it, please do, but you'll have to be quick! Here's the link:

http://petitions.pm.gov.uk/lymphoedema/

[Bahons2]

Hi All

This is just a little update on the Lymphoedema Petition.

It closed with over 1,040 signatures on 27th January.

Everyone who signed will receive, in due course, an e-mail from the Downing St website containing a link to the official Government response. This may take a while.

When the response is ready, I'll also post it on here for those who didn't get the chance to sign. I'm not expecting anything seismic; more likely a load of weasel words, but at least 1,040 of us had the chance to tell them we didn't think what was currently on offer for most lymphoedema sufferers was in any way good enough.