Welcome to the online information resource and support group for those with lymphedema and for the family, friends, and therapists who care for them.

Are you New to Lymph Notes?

• To learn about the many features of this website, read Exploring Lymph Notes.
• Are you looking for a specific article? Go to Lymph Notes Table of Contents and select from the list of articles that are posted on this website.
• To find a specific topic, type the term in the search box at the top of each page.
• To search only the forum postings, use the Search function at the bottom of this page.
• The definitions of lymphedema related terms are provided in the Lymphedema Glossary.
• Each picture (in the upper right corner of the page) is linked to an interesting story. To read the story, just click on the image and it will link to it.
• Would you like to have patient education handouts to distribute at cancer or lymphedema related meetings or similar events? To receive from Lymph Notes a free PDF file of the handout "Are You at Risk of Lymphedema?" just e-mail your request to ann@lymphnotes.com You are welcome to print as many copies of this handut as you wish.
• Just released! Thanks to the kindness of a good Samaritan, the Lymph Notes brochure “Está Usted en Riesgo de Desarrollar Linfedema?” is now available en Español. To receive a free PDF file of this Spanish handout, e-mail your request to ann@lymphnotes.com (Please mention that you want the Spanish version!) You are welcome to print as many copies of this handut as you wish.
• Do you need help in finding quality lymphedema care? If so, e-mail your request for a copy of "Finding Quality Lymphedema Care" to ann@lymphnotes.com. If you mention the state where you live, we will include a copy of the Lymph Notes list of lymphedea facilities that we have located in your state.
• To receive a free “Lymphedema Alert Wallet Card,” e-mail your request to ann@lymphnotes.com. Important! Include your name and address so we can mail this to you.

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Helpful Books from Lymph Notes

Lymphedema Caregiver’s Guide is the first book specifically for family, friends, and professionals who provide, or arrange for, lymphedema home care. Written by Mary Kathleen Kearse, PT, CLT-LANA (an experienced lymphedema therapist) Elizabeth McMahon, PhD (a clinical psychologist) and Ann Ehrlich, (a professional medical writer). This book covers all aspects of lymphedema home care including emotional support. For more information about the book, click on Lymphedema Caregiver’s Guide. For ordering information click here. Buy now from Amazon.com.

Living Well with Lymphedema by A. Ehrlich, A. Vinjé-Harrewijn PT, CLT-LANA, and E. McMahon PhD. “The most comprehensive lymphedema book on the market. It is wonderful for patients and for those at risk. So many sources tell lymphedema patients what they can not do. This book encourages us in what we can do!" For ordering information click here. Buy now from Amazon.com.

 

Voices of Lymphedema is an exciting book written by patients, therapists, and others who know lymphedema best. As described by one of the many enthusiastic reviewers, "This is a must read!" For more information and reviews (including those from the National Lymphedema Network (NLN) click here, for ordering information click here or buy now from Amazon.com.

 

 

Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon PhD. "Empowering and practical, with exercises the reader can jump right into and know they are taking steps to help themselves. I love the emphasis throughout the book that the patient is in control." For For ordering information click here.Buy now from Amazon.com. For details on Dr. McMahon’s speaking engagements click here to visit her website.

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What is Happening?

Would you like to have your support group meeting, lymphedema related event,or news listed here? Making this happen is easy and cost free. For details. e-mail Ann at ann@lymphnotes.com.

• Don’t miss "I will Survive!", the love story of baby Jadyn’s struggle with a rare form of primary lymphedema as reported by her loving aunt Trisha. March 2010. Savor the "good news update" about Jadyn!
• Read ACT NOW ! by Bob Weiss (the Lymphactivist) and We Can Make it Happen! by Heather Ferguson to discover the vital role you can play in helping to pass important legislation to benefit all lymphedema patients.
• On March 17, 2010, from 5:30 to 6:50PM, the Lymphedema Education & Resource Group will meet in California Pacific Medical Center, Women's Health Resource Center - San Francisco, 3698 California St, 1st floor (between Cherry & Maple) to discuss “You Are What you eat. For details contact Jayah@AdventureBuddies.net. Our meetings are free and all are welcome.
• Click on Gain Insight on Lymphedema from the Mayo Clinic for details on the May 17, 2010 Alberta Lymphedema Association symposium or see www.albertalymphedema.com.
• From Sept. 22 through 26, 2010, the 9th National Lymphedma Network International Conference for Healthcare Professionals will be held in Orlando, FL. For details about the meeting, go to the NLN meeting website.
• On Saturday, October 16, 2010, the Lighthouse Lymphedema Network will sponsor the 13th State of Georgia Lymphedema Education and Awareness Program. This full day of excellent programming will be held at DeKalb Medical Auditorium. Registration is required before. To receive an informative brochure and registration form, which must be complete by Oct 10th, contact Elaine Gunter now by e-mail at elaine.gunter@comcast.net
• Dr. Kathryn Schmitz has issued a news alert to clarify misconceptions regarding her study on Weight Lifting and Lymphedema. For details, click on Weight Lifting Misconceptions. Additional details are available on the NLN website.

• The articles Genetics and Primary Lymphedema and Genetic Testing for Primary Lymphedema are recommended reading to learn more about the genetic mysteries associated with different types of primary lymphedema. In these articles, Kara Lavine M.S. includes information as to where you can find help if faced with these problems.
• Find a wealth of lymphedema information in one location! Go to the website http://www.usa.gov and, in the search box, type lymphedema. Surprise, a list of 15,400 informative websites about this topic will come up!
• Do you ever wonder about those Internet ads to cure lymphedema? To learn the facts from the NLN read Can Surgery Cure Lymphedema?
• We have updated information from ImpediMed, Inc. a Gold Sponsor.
• Learn more about coping with Medicare read the articles by Bob Weiss Submitting Documentation to Medicare, Learn More about Lymphedema Pumps, and The History of Lymphedema Pumps.

Updated: 2010-03-07