Welcome to the online information resource and support group for those with lymphedema and for the family, friends, and therapists who care for them.

Are you new to Lymph Notes?

• To discover the many features are available here, please read Exploring Lymph Notes
• Are you looking for a special topic? To find it, use this Search function.
• Are you looking for a specific article? Go to Lymph Notes Table of Contents for a listing of the articles you will find on on this website.
• Looking for a definition? Go to the Lymphedema Glossary and type in that term.
• Are you curious about the stories that accompany the photos in the upper right corner? If so, just click on the photo when it appears in that box.  
• To receive a free “Lymphedema Alert Wallet Card,” e-mail your name and mailing address to ann@lymphnotes.com. _____________________________________________________________________

Helpful Books from Lymph Notes

Voices of Lymphedema is an exciting book written by patients, therapists, and others who know lymphedema best. As one of the enthusiastic reviewers described it, "This is a must read!" For more information and reviews (including those from the National Lymphedema Network (NLN), plus ordering information click here.

Living Well with Lymphedema by A. Ehrlich, A. Vinjé-Harrewijn PT, CLT-LANA, and E. McMahon PhD. “The most comprehensive lymphedema book on the market. Wonderful for patients and those at risk. So many sources tell lymphedema patients what they can’t do. This book encourages us in what we can do!" Tracy Novak

Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon PhD. "Empowering and practical, with exercises the reader can jump right into and know they are taking steps to help themselves. I love the emphasis throughout the book that the patient is in control." Christine P. Thomas, MSPT, CLT-LANA. For details on Dr. McMahon’s speaking engagements click here to visit her website.

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What is Happening?

Would you like to have your support group meeting, or lymphedema related event, listed here? Making this happen is easy and cost free. For details. e-mail Ann at ann@lymphnotes.com.

• On April 30, 2008, the press release titled “Data Show Preoperative Assessment of Breast Cancer Patients Enables Early Diagnosis, Successful Treatment of Lymphedema” was published. This contains exciting new information on the prevention of lymphedema. To read the entire release, click on Exciting News!

• On May 21, 2008, from 5:00 to 6:30 PM, the Lymphedema Education and Support Group will meet in San Francisco, at the California Pacific Medical Center, Women's Health Resource Center, 3698 California St., 1st floor, between Cherry & Maple. Don Kellog, innovator of directional flow garments, will give a presentation on these types of garments that are very effective in the treatment of lymphedema and, most importantly, are very comfortable to wear. The meeting is open to all and you are encouraged to bring a friend. If you have any questions contact Bettina Neumann at 415-282-4083.

• On June 7, 2008. “The Lymphedema Seminar,” sponsored by the Centers for Rehab Services. This free program, from 9:00 to 11:00 AM (including Continental breakfast), will be held in the auditorium of Magee-Womens Hospital of UPMC. Lymphedema Therapists will speak on topics of concern to those with lymphedema. Because space is limited, make your reservation before June 2, 2008 by calling 412-851-8850.

• Save August 27-31, 2008 for the 8th NLN International Conference “Lymphedema: Riding The Wave of Discovery” which will be held in San Diego, CA. This educational program is intended for all medical professionals, including physicians, nurses, allied healthcare professionals, and basic scientists interested or involved in the field of Lymphology. For more details visit the NLN website.

• On Wednesday, August 27, 2008, from 1 to 5 PM, Elizabeth J. McMahon, PhD will present a pre-conference seminar on “Responding to Non-Compliance and Preventing Personal Burn Out.” Elizabeth is a co-author of Living Well With Lymphedema" and the author of “Overcoming the Emotional Challenges of Lymphedema” published by Lymph Notes.

New Articles

• Learn more about Lymphedema Out-of-Pocket Costs.
• Robert Weiss, the Lymphactivist, has provided important information about the recent ruling Compression Garments Meet Medicare Definition. Although the news is good, YOUR action is still important! Please read the article and follow his action suggestions. Treatment facilities and support groups are welcome to make copies this article for distribution to concerned individuals.
• Read the updated information on Burn Treatment and Lymphedema and First Aid and Lymphedema. 
• If you are lucky enough to have a sister or know someone who has a sister, learn more about the purpose and reasons for joining The Sister Study.  
• Low Level Laser Therapy provides information about the only form of laser therapy approved by the FDA for treatment of post-mastectomy lymphedema.
• Bioimpedance for Lymphedema Management introduces a new method of quickly obtaining accurate measurements of limbs affected with lymphedema.
• Learn about newer types of the Lymphedema Pumps and discover the special features of each. 
• Mary Speaks Out is a real letter that may inspire you to make your voice heard too!

Quotation of the Month          A simple act of kindness has a beauty all its own.