Click to read "I love my Caregivers" by Wanda
Welcome to your online information resource for those having, or at risk of developing lymphedema. This website is also for the family, friends, and therapists who care for these individuals.
ARE YOU NEW TO LYMPH NOTES?
URGENT: Stop Medicare Pump Coverage Changes, before December 1, 2015
Medicare is making a policy change will reduce lymphedema treatment options and restrict reimbursement for pneumatic compression devices (PCDs) for more than a million lymphedema patients. Contact your legislator today to stop this restrictive policy from going into effect on December 1, 2015.
For more information and help notifying your legislator, see PCDpolicy.org.
See also the letter written by LymphActivist to the Medical Directors of the four DME MACs pointing out the reasons why this LCD, as conceived and written, will harm lymphedema patients and cause Medicare to spend more money for treatment of later stages of lymphedema, at http://www.lymphactivist.org/letter_to_cms.php.
Living with Lipedema and Dealing with Dercum's
FDRS Conference will be April 8-10, 2016 at the Marriott St. Louis Airport hotel in St. Louis, MO. Keynote speaker is world renowned Fat Disorder expert, Karen L. Herbst, MD, PhD. Topics to include surgical and non-surgical treatment options in managing both Lipedema and Dercum's Disease. Patients, therapists, and physicians are all encouraged to attend. Click here to register today
HELPFUL BOOKS FROM LYMPH NOTES
Coming soon Lymphedema and Lipedema Nutrition Guide!
Living Well with Lymphedema by A. Ehrlich, MA, A. Harrewijn PT, CLT-LANA, and E. McMahon PhD. “The most comprehensive lymphedema book on the market. It is wonderful for patients and for those at risk. So many sources tell lymphedema patients what they can not do. This book encourages us in what we can do!" For ordering information click here or buy now from Amazon.com.
Lymphedema Caregiverís Guide is the first book specifically for family, friends, and professionals who provide, or arrange for, lymphedema home care. Written by Mary Kathleen Kearse, PT, CLT-LANA (an experienced and highly qualified lymphedema therapist), Elizabeth McMahon, PhD (a clinical psychologist), and Ann Ehrlich, (a professional medical writer). "This book covers all aspects of lymphedema home care including emotional support." For more information, click on Lymphedema Caregiverís Guide. For ordering information click here or buy now from Amazon.com.
Voices of Lymphedema is an exciting book written by patients, therapists, and others who know lymphedema first hand. As described by one of the many enthusiastic reviewers, "This is a must read book!" For more information and reviews (including those from the National Lymphedema Network (NLN) click here. Buy now from Amazon.com in paperback or Kindle e-book format. Voices is also available in other e-book formats including B&N Nook and Apple iBooks.
Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon PhD is an "Empowering and practical book, with exercises that the reader can jump right into and know they are taking steps to help themselves. I love the emphasis throughout the book that the patient is in control." For ordering information click here or buy now from Amazon.com.
© 2015 by Lymph Notes, all rights reserved. This information does not replace the advice of a physician.
Registered user? Log in here: