Living well with Lymphedema

I love my Caregivers by Wanda

I ignored my worsening arthritis and other signs of the aging process. Denial was successful until I developed an infection in my foot. At this point I had to admit that I could no longer reach my feet to not provide my foot care. Also, I had stopped wearing my compression stockings because I could not get them on or off without help.

Wonderful Winter Weather by Linda

Summer heat makes having lymphedema evenmore difficult. Therefore it is not surprising that winter is one of my favorite seasons.

A Caregiver Speaks Out by Partner

A caregiver describes how lymphedema affects the lives of those who help others with lymphedema.

Backpacking and Lymphedema by trisha

Living successfully with lymphedema is a balancing act between being active without overdoing and making the condition worse. The following are the steps I took that made it possible for me to successfully go back packing with my son's the Boy Scout troop!

Benefits of NLN Membership

An invitation to join review the benefits of being a member of the National Lymphedema Network (NLN) .

Few and Far Between by Wanda

We live in beautiful open country where neighbors, and health services, are few and far between. George and I love our life style and things were going really well until I developed lymphedema. Then the need for ongoing treatment created a real problem!

Harley Happiness by Har-Lee

I have a long standing love affair with a Harley (bike that is). Despite cancer and the lymphedema that followed soon the surgery, this affair is still going strong!

How L.S.A.P Changed My Life

This story, written by Kim Avanthay, tells how becoming an LSAP participant has changed her life. Kim invites YOU to consider this journey too!

Improved Hospital Safety: The Story of G-Sleeve

As a hospital patient do you worry that someone will ignore the precautions for your lymphedema at risk arm? A nurse, who shares these worries, has developed a safeguard to better protect these patients.

Inpatient Lymphedema Care at Siskin Hospital by John Jordi

The Lymph Notes team noticed an increase in the number of inquiries about inpatient treatment for lymphedema. One part of the problem is locating an appropriate facility, and another important issue is knowing whether the facility actually provides the specialized program to meet your lymphedema needs.

 

 

 

Our thanks to John Jordi of the Siskin Hospital for Physical Rehabilitation of Chattanooga, TN for providing this information about their inpatient lymphedema treatment program. 

Ladies Always Wore Dresses by Betty

My name is Betty and I’m sharing my story in the hope that others can learn from it. I was born 73 years ago with swelling of my left foot, leg, and part of the left side of my body. I have learned that this is congenital primary lymphedema; however in all of my years, I have never met anyone else with this condition.

My Wrapping Saga by JackieDoss

For your pleasure, Jackie has shared the timeline, frustration, and triumph of her struggle with wrapping her own arm.

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