Click to read "I love my Caregivers" by Wanda
Welcome to your online information resource for those having, or at risk of developing lymphedema. This website is also for the family, friends, and therapists who care for these individuals.
International Lymphatic Disease and Lymphedema Patient Registry & Biorepository
LE&RN, in partnership with Stanford University, has established the International Lymphatic Disease and Lymphedema Patient Registry and Biorepository to collect information about individuals diagnosed with a lymphatic disease. Please consider participating in this important project to support research that may lead to preventing and curing lymphedema. For more information see the project website: https://lernregistry.stanford.edu/
Study Participants Needed in San Francisco
You can help researchers at University of California, San Francisco learn if treatment using a new negative pressure massage device is safe and effective at improving lymphedema swelling, skin condition, and movement, compared to manual lymphatic drainage massage.
Study is open to women with lymphedema in only one arm, of at least one year duration, that has not changed significantly in the past 3 months. Participants will be paid $50 for their time, have parking paid, and will receive 12 massage treatments for their lymphedema arm.
For more information, please contact Betty Smoot, PT, DPTSc at 707 494 8262 or via e-mail: email@example.com.
Farewell Lymph Notes Forums
We have disabled our online community feature known as the Lymph Notes Forums due to declining participation and technical issues. If you get an access denied error (403), it is not about you or your user-id. This part of the website has been closed. Thank you to everyone who participated in the past.
Ann Ehrlich, founder of Lymph Notes, author of Living Well With Lymphedema and many other books, died on June 3, 2017. See her obituary for more information.
The family requests that in lieu of flowers, friends honor Ann by contributing to the lymphedema scholarships through The Royalty Fund administered by Triangle Community Foundation. Memorial gifts may be made online through the Foundation’s website at http://trianglecf.org/donate/, or mailed to Triangle Community Foundation, P.O. Box 12729, Durham, NC 27709.
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HELPFUL BOOKS FROM LYMPH NOTES
Learn how better nutrition can improve your symptoms and reduce pain. List price for the paper version has been reduced, order now from your favorite bookstore, Amazon.com, Amazon Canada, Amazon UK, or Barnes and Noble (ISBN 978-0976480686). E-books are available from Amazon.com, Amazon Australia, Amazon Canada, Amazon UK, or Apple iBooks (ISBN 978-0976480693).
Living Well with Lymphedema by A. Ehrlich, MA, A. Harrewijn PT, CLT-LANA, and E. McMahon PhD. “The most comprehensive lymphedema book on the market. It is wonderful for patients and for those at risk. So many sources tell lymphedema patients what they can not do. This book encourages us in what we can do!" Order from your favorite bookstore, Amazon.com, Amazon Canada, Amazon UK, or Barnes and Noble (ISBN 978-0-9764806-1-7).
Lymphedema Caregiverís Guide is the first book specifically for family, friends, and professionals who provide, or arrange for, lymphedema home care. Written by Mary Kathleen Kearse, PT, CLT-LANA (an experienced and highly qualified lymphedema therapist), Elizabeth McMahon, PhD (a clinical psychologist), and Ann Ehrlich, (a professional medical writer). "This book covers all aspects of lymphedema home care including emotional support." Order from your favorite bookstore, Amazon.com, Amazon Canada, Amazon UK, or Barnes and Noble (ISBN 978-0-9764806-7-9).
Voices of Lymphedema is an exciting book written by patients, therapists, and others who know lymphedema first hand. As described by one of the many enthusiastic reviewers, "This is a must read book!" For more information and reviews (including those from the National Lymphedema Network (NLN) click here. Order in paper from your favorite bookstore, Amazon.com, Amazon Canada, Amazon UK, or Barnes and Noble (ISBN 978-0-9764806-5-5) or as an e-book from Amazon.com, Amazon Australia, Amazon Canada, Amazon UK, or Apple iBooks (ISBN 978-0-9764806-6-2).
Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon PhD is an "Empowering and practical book, with exercises that the reader can jump right into and know they are taking steps to help themselves. I love the emphasis throughout the book that the patient is in control." Order from your favorite bookstore, Amazon.com, Amazon Canada, Amazon UK, or Barnes and Noble (ISBN 978-0-9764806-3-1).
New Lymphedema Treatements in Clinical Trials
Stanford is recruiting patients for two exciting clinical trials of new treatments for lymphedema:
See the Clinical Trials website for further details on criteria and contact information.
© 2020 by Lymph Notes, all rights reserved. This information does not replace the advice of a physician.
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