Lymph Notes: lymphedema information, books, and support

[ Click to read 'Get to Know the LRF' by Ann ]

Welcome to the online information resource and support group for those with lymphedema and for the family, friends, and therapists who care for them.

Are you New to Lymph Notes?/EM>

To learn about the many features of this website, read Exploring Lymph Notes.
Are you looking for a specific article? Go to Lymph Notes Table of Contents and select from the list of articles that are posted on this website.
To find a specific topic, type the term in the search box at the top of each page.
To search only the forum postings, use the Search function at the bottom of this page.
The definitions of lymphedema related terms are provided in the Lymphedema Glossary.
Each picture (in the upper right corner of the page) is linked to an interesting story. To read the story, just click on the image that links to it.
Would you like to have patient education handouts to distribute at cancer or lymphedema related meetings or similar events? To receive from Lymph Notes a free PDF file of the handout "Are You at Risk of Lymphedema?" just e-mail your request to ann@lymphnotes.com You are welcome to print as many copies of this handut as you wish.
Just released! Thanks to the kindness of a good Samaritan, the Lymph Notes brochure “Está Usted en Riesgo de Desarrollar Linfedema?” is now available en Español. To receive a free PDF file of this Spanish handout, e-mail your request to ann@lymphnotes.com (Please mention that you want the Spanish version!) You are welcome to print as many copies of this handut as you wish.
Do you need help in finding quality lymphedema care? If so, e-mail your request for a copy of "Finding Quality Lymphedema Care" to ann@lymphnotes.com. If you mention the state where you live, we will include a copy of the Lymph Notes list of lymphedea facilities that we have located in your state.
To receive a free “Lymphedema Alert Wallet Card,” e-mail your request to ann@lymphnotes.com. Important! Include your name and address so we can mail this to you.

Helpful Books from Lymph Notes

Lymphedema Caregiver’s Guide is the first book specifically for family, friends, and professionals who provide, or arrange for, lymphedema home care. Written by Mary Kathleen Kearse, PT, CLT-LANA (an experienced lymphedema therapist) Elizabeth McMahon, PhD (a clinical psychologist) and Ann Ehrlich, (a professional medical writer). This book covers all aspects of lymphedema home care including emotional support. For more information about the book, click on Lymphedema Caregiver’s Guide. For ordering information click here . Buy now from Amazon.com.

Living Well with Lymphedema by A. Ehrlich, A. Vinjé-Harrewijn PT, CLT-LANA, and E. McMahon PhD. “The most comprehensive lymphedema book on the market. It is wonderful for patients and for those at risk. So many sources tell lymphedema patients what they can not do. This book encourages us in what we can do!" For ordering information click here. Buy now from Amazon.com.

Voices of Lymphedema is an exciting book written by patients, therapists, and others who know lymphedema best. As described by one of the many enthusiastic reviewers, "This is a must read!" For more information and reviews (including those from the National Lymphedema Network (NLN) click here, for ordering information click here or buy now from Amazon.com.

Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon PhD. "Empowering and practical, with exercises the reader can jump right into and know they are taking steps to help themselves. I love the emphasis throughout the book that the patient is in control." For For ordering information click here.Buy now from Amazon.com. For details on Dr. McMahon’s speaking engagements click here to visit her website.

What is Happening?

Would you like to have your support group meeting, lymphedema related event,or news listed here? Making this happen is easy and cost free. For details. e-mail Ann at ann@lymphnotes.com.

Don’t’ miss reading “I will Survive!”, the love story of baby Jadyn’s struggle with a rare form of primary lymphedema as reported by her loving aunt Trisha.
On Saturday March 6, 2010, from 8:30 AM to 12:00 PM, the British Columbia Lymphedema Association (BCLA) will host their first Lymphedema Awareness Day celebration in Burnaby, BC (near Vancouver). Admission is free; however due to limited seating, registration is required by March 5th. To register, or for more details about this interesting program, go to www.bclymph.org or call 1-877-991-BCLA.

On Monday, May 17, 2010, The "Alberta Lymphedema Learning Association” is presenting a meeting titled “Gain Insight on Lymphedema from the Mayo Clinic.” The meeting will be held at the Clara Christie Theatre in the Health Sciences Centre, next to the Foothills Hospital in Calgary. The speaker will be Dr. Andrea Cheville MD, MSCE, Associated Professor of Physical Medicine and Rehabilitation from the Mayo Clinic.
At 8 AM there will be a presentation for Nurses, O.T.’s, Massage Therapists and other Health Professionals.
At 1 PM there will be a presentation for Patients and Family Members
At 5:30 PM – Presentation for Doctors.
These presentations are offered free of charge by the Alberta Lymphedema Association to enhance the quality of care for people with lymphedema and Food and Refreshments served at all sessions.
To register for any of these presentations, go online to www.albertalymphedema.com or phone Diane Martin at 403-281-9205 for more information.
From Sept. 22 through 26, 2010, the 9th National Lymphedma Network International Conference for Healthcare Professionals will be held in Orlando, FL. For details about the meeting, go to the NLN meeting website.
Dr. Kathryn Schmitz has issued a news alert to clarify misconceptions regarding her study on Weight Lifting and Lymphedema. For details, click on Weight Lifting Misconceptions. Additional details are available on the NLN website.
Genetics and Primary Lymphedema is recommended reading to learn more about the genetic mysteries that cause types of primary lymphedema. In her article, Kara Lavine included information on where to find help if you are faced with this type of problem.
The article Say No to Neosporin warns about the first aid cream that may not be helpful because it produces allergic reactions in as many as 20 to 25 percent of those who use it often.
Do you ever wonder about those Internet ads to cure lymphedema? To learn the facts, as presented by the NLN, read Can Surgery Cure Lymphedema?
We have updated information from ImpediMed, Inc. a Gold Sponsor.
Learn more about coping with Medicare read the articles by Bob Weiss Submitting Documentation to Medicare, Learn More about Lymphedema Pumps, and The History of Lymphedema Pumps.

Updated: 2010-02-08

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