Welcome to the online information resource and support group for those with lymphedema and for the family, friends, and therapists who care for them.

ARE YOU NEW TO LYMPH NOTES?

• To discover the many features available on the Lymph Notes website, click on "Exploring Lymph Notes."
• If you are looking for a specific article, click on Lymph Notes Table of Contents. When the list of articles appears, click on the title of the article you are seeking.
• To find a specific forum topic, go to the orange bar near the top of the page and click on the heading "Lymph Notes Forums." This will take you to the forum page and you can search there.
• To search the glossary, type lymphedema glossary in the search box. Click on this heading. Then type the term you want defined in. Each picture in the upper right corner of the home page is linked to an interesting story. To read the story, click on photo link and the story will appear. 
• Would you like to have patient education handouts to distribute at cancer or lymphedema related meetings or similar events? To receive from Lymph Notes a free PDF file of the handout "Are You at Risk of Lymphedema?" just e-mail your request to ann@lymphnotes.com. You are welcome to print as many copies of this handout as you wish.
• Thanks to the kindness of a good Samaritan, this Lymph Notes brochure “Está Usted en Riesgo de Desarrollar Linfedema?” is now available en Español. To receive a free PDF file of this Spanish handout, e-mail your request to ann@lymphnotes.com (Please mention that you want the Spanish version!) You are welcome to print as many copies of this handout as you wish.
• Do you need help in finding quality lymphedema care? If so, e-mail your request for a copy of the document  "Finding Quality Lymphedema Care" to ann@lymphnotes.com. If you mention the state where you live, we will include a copy of the Lymph Notes list of lymphedema facilities located in your state.
• What is happening? Would you like to have your support group meeting, lymphedema related event,or news listed here? Making this happen is easy and free of cost. For details. e-mail Ann at ann@lymphnotes.com.

HELPFUL BOOKS FROM LYMPH NOTES                                

 Living Well with Lymphedema by A. Ehrlich, A. Vinjé-Harrewijn PT, CLT-LANA, and E. McMahon PhD. “The most comprehensive lymphedema book on the market. It is wonderful for patients and for those at risk. So many sources tell lymphedema patients what they can not do. This book encourages us in what we can do!" For ordering information click here. now from Amazon.com. 

 Lymphedema Caregiver’s Guide is the first book specifically for family, friends, and professionals who provide, or arrange for, lymphedema home care. Written by Mary Kathleen Kearse, PT, CLT-LANA (an experienced and highly qualified lymphedema therapist), Elizabeth McMahon, PhD (a clinical psychologist), and Ann Ehrlich, (a professional medical writer). "This book covers all aspects of lymphedema home care including emotional support." For more information about the book, click on Lymphedema Caregiver’s Guide. For ordering information click here. Buy now from Amazon.com.

Voices of Lymphedema is an exciting book written by patients, therapists, and others who know lymphedema best. As described by one of the many enthusiastic reviewers, "This is a must read book!" For more information and reviews (including those from the National Lymphedema Network (NLN) click here, for ordering information click here or buy now from Amazon.com.

 Overcoming the Emotional Challenges of Lymphedema by Elizabeth McMahon PhD. "Empowering and practical, with exercises the reader can jump right into and know they are taking steps to help themselves. I love the emphasis throughout the book that the patient is in control."

For ordering information click here. Buy now from Amazon.com. 

AVAILABLE LYMPHEDEMA IDENTIFICATION RESOURCES                                                                                      

•  Free Lymphedema Alert Wallet cards are available from Lymph Notes. To request your card, e-mail Ann at ann@lymphnotes.com.  Be certain to include your name and mailing address so we can send your card as quickly as possible! 
• Free plastic lymphedema identification bracement are available from Peninsula Medical. To request one, visit their website at at www.noblemed.com 
• A special sleeve, or legging, designed by a nurse to protect a lymphedema affected limb when a patient with lymphedema requires surgery. Most hospitals do not provide these sleeves; however you can purchase your own g-sleeve by visiting their website at  www.g-sleeve.com
• The National Lymphedema Network has a special shop where Bracelets and necklaces are available tto identify that you have lymphedemaThe National Lymphedema Network (NLN) has a special store where you can select from a variety of bracelets or necklaces to identify that you have lymphedema. To see the selection, visit their website at www.lymphnet.org

LEARN A LOT ON VIDEO! 

Dr.Stanley Rockson, of Stanford University School of Medicine, has posted a series of videos about lymphedema.  Go to this website to http://www.youtube.com/watch?v=XR-9duCfgF0&feature=mfu_in_order&list=UL to watch these films. You can learn so much here. As an example according to Dr. Rockson, "One person out of 25 in the United States is affected by lymphedema."

Our thanks to Doris, who is a CLT-LANA, for the "heads up" on this resource. She warned that these are lengthy videos ( 6 parts on YouTube); however, she also said that they are really well worth the time and very manageable if you break up your viewings into several sessions.

GET THE LATEST INFORMATION ON EXERCISES IN THE TREATMENT OF LYMPHEDEMA FROM THE NLN!

This is titled "Position Paper on Exercise." This latest new and important information can be found by going to www.lymphnet.org and searching under the heading of "Position Papers."

• LET US HELP YOU PROMOTE YOUR NATIONAL LYMPHEDEMA  DAY EVENT on March 6th, 2012. As soon as possible, send information about how your group plans to celebrate this special date to Ann at ann@lymphnotes.com and we will be happy to publish the information about your event!
• Plan to attend a very special Philadelphia Awareness day on Sunday March 4, 2012. For details contact Jan Bruchner by e-mail at jsbruchner@earthlink.net or by phone at 1-214-880-204-
• PLAN AHEAD! The 4th Lymphedema Care Forum will be held on Saturday, June 2, 2012. Attendance is limited and early registration is recommended. For details, and a registration form, go to 4th Lymphedema Care Forum.

Updated: 2012-02-02