Stories

• Living well with Lymphedema

  I love my Caregivers by Wanda

  I ignored my worsening arthritis and other signs of the aging process. Denial was successful until I developed an infection in my foot. At this point I had to admit that I could no longer reach my feet to not provide my foot care. Also, I had stopped wearing my compression stockings because I could not get them on or off without help.

  A Special Season by Ingrid

  The beauty of fall leaves and a large extended family are my favorite reasons for loving to live in New England. (Mud season and black flies are things I could happily do without.)

  Backpacking and Lymphedema by TracyWVLN

  Living successfully with lymphedema is a balancing act between being active without overdoing and making the condition worse. The following are the steps I took that made it possible for me to successfully go back packing with the Boy Scouts!

  Friday Night Football by Greg

  When I was a little kid my biggest goal was to be one of those players who goes running out onto the football field as the whole town cheers.

  Harley Happiness by Har-Lee

  I have a long standing love affair with a Harley. Despite cancer and lymphedema, that affair is still going strong!

  How L.S.A.P Changed My Life

  This story, written by Kim Avanthay, tells how becoming an LSAP participant has changed her life. Kim invites YOU to consider this journey too!

  Improved Hospital Safety: The Story of G-Sleeve

  As a hospital patient do you worry that someone will ignore the precautions for your lymphedema at risk arm? A nurse, who shares these worries, has developed a safeguard to better protect these patients.

  Inpatient Lymphedema Care at Siskin Hospital by John Jordi

  The Lymph Notes team noticed an increase in the number of inquiries about inpatient treatment for lymphedema. One part of the problem is locating an appropriate facility, and another important issue is knowing whether the facility actually provides the specialized program to meet your lymphedema needs.

  Our thanks to John Jordi of the Siskin Hospital for Physical Rehabilitation of Chattanooga, TN for providing this information about their inpatient lymphedema treatment program. 

  Just Live With It! by Barbara Pilvin

  For four decades now, until I was diagnosed with primary (hereditary) lymphedema, the words "Just Live with it!" were all I was offered. Today, because of insurance limitations, I could easily die from this disease that is treatable and controllable.

  My Wrapping Saga by JackieDoss

  For your pleasure, Jackie has shared the timeline, frustration, and triumph of her struggle with wrapping her own arm.

  What Happened to Your Legs? by Moonsoul

  I don’t really know how to start. Forever I have been talking to people who just give an odd look when I answer the question of, "Oh dear what did you do to your legs?" I was feeling pretty lost and discouraged, until I found this site. Reading the stories made me cry. Not because I was sad but because I was not alone.

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